And then you were five…
My darling boy, today you turned five. I can’t believe it. Literally. I feel like I need to pinch myself. Look at you, every inch of your amazingness, determination and...
Mummy, that boy is too old to be in a pushchair…
Does he talk? Does he walk? What’s that tube? Why can’t he eat? Look at that boy, I feel really sorry for him. What’s wrong with him? These are only a few of...
Surprising Triggers
One thing I’ve realised very recently is that Freddie starting school is a trigger for me. I’m sure some people will know exactly what I mean by saying that,...
EHCP
For those who don’t know an EHCP is an Educational Health Care Plan. Some might lead you to believe it is a golden ticket to education for SEN children and they get...
Four Long Years
This week it will be four years since we first heard the words “Mitochondrial Disease”. Four years since we dialed 111 because our baby was doing some strange...
Long Time No See
I seem to be starting all my blog post since 2018 with “I’ve not written in a while” or “I’m going to start writing more”. Then I...
2019…
I have sat in this chair and written every New Years Eve since Mito entered our lives uninvited. Each time I have tried to summarise my emotions about the twelve months gone....
The S Word…
When we found out I was expecting a boy I received so many comments along the lines of “how wonderful, a little boy. Oldest in the (school) year. He’ll be picked...
Dear Freddie…
Firstly, can I say… FOUR!! Wowzers! How have we got here?! How lucky are we?! Another year, another year of laughter, love, smiles and memories. We have done so much;...